Our Ever Present Companion…..Rectal Diazepam

Following my post on Toilet, I have been asked why Rectal Diazepam makes our “must travel with list”.

Rectal Diazepam! It does not only make that list, it is our ever present companion: ever near.

My father, may God continue to rest his soul, used to say to us; “Always hope for the best, but be prepared for the worst.”

Just like the spare tyre in your car, though you hope and pray that you do not have a flat tyre while embarking on a journey daily, yet you are always prepared for such emergency, by never failing to have your spare tyre with you.

If your child with CP happens to be among the approximately 50 percent of children with CP that is estimated to have seizures, you will understand the importance of making Rectal Diazepam your ever constant companion, more so in this our society where you can not readily call 911. Ziim is in that group of children that have seizures, though we have not witnessed one that required our using rectal diazepam for quite some time. Thinking of it now and looking at our chat, she has not had the grand mal for well over a year. I know it could come anytime and I always am ready. Yes, my faith is that little.

We are told by the doctors to take the child to the hospital when a seizure lasts 5 minutes and does not stop. The books say to call an ambulance. And I laugh. Call an ambulance, in this our clime! Now I can afford to laugh. Ziim used to have the grand mal seizures that would last for well over 30 minutes and not stop. She used to have what they call status epilepticus. Imagine watching your child jerk and stretch with eyes rolling upwards for well over 30 minutes! Imagine driving from Bode Thomas to LUTH’s Children Emergency Room (CHER) through the traffic on Ishaga road or to Randle general hospital (that was before the Gbaja annex for children opened a few years ago).  I remember on one occasion I abandoned my car on the road because of traffic and jumped on a bike with Ziim on my shoulder running to the hospital!

Then, I got to know about Rectal Diazepam, just by mere happenstance. It was a passing comment by a doctor. Next, I visited Mr. Google, called a doctor friend who gave us a prescription. That ended our race to ER on account of seizures; it also ended my watching my daughter with my heart in my mouth seizure for a long time.

Seizures could “disgrace” you, these grand mal seizures. It could happen anytime and anywhere. Ziim once had one in an airplane about 30 minutes after takeoff. Fortunately, I had the rectal diazepam with me and quickly administered it before we make a spectacle of ourselves.

Like I said earlier, it’s been well over a year and she is yet to have that. I cannot say for sure what I could attribute that to as we have been trying a number of things. I must not forget to say that we now have a consultant psychiatrist who comes in weekly to the center for the past eighteen months or so, she constantly checks on the children and has had to adjust Ziim’s anti seizure medications a few times. That, I am sure has helped greatly and mummy is happier and thankful for that.

Yet, I still anticipate the seizures and carry the rectal diazepam when we are going out, parties, travelling etc…….. why is my faith this little. So if your child falls in that category of children with CP who often go into a seizure, you may consider having a discussion with her doctor about rectal diazepam……….our ever constant companion, should the seizures occur!